Yesterday we headed to see Dr. G, the pediatric urologist to find out what they are going to do about the urinary reflux. If you missed what is going on with my baby girl read about her recurring high fevers, and the procedure which told us she has urinary reflux.
So anyways, the pediatric urologist was wonderful. I had a list of questions, and he answered every single one of them, without me having to ask. He states that she is a grade 3 out of 5, so right in the middle. She has a 50/50 chance of outgrowing this. He has decided to see if she’ll outgrow this, before trying surgery. Surgery is a 3 day stay in the hospital, but there is a non-invasive surgery(which he’ll talk to us about if we have to do it). She will be on antibiotics for a long time. Hopefully they work. If she gets any UTI’s while on the antibiotics, it means they are NOT working, and surgery will be required. Dr. G says that it could take to early/late teens before she does outgrow this, so it’s just a waiting period. She will have to have urine cultures every 4 months, and a repeat VCUG in 18 months. During this time they will see if there has been any changes. If it gets worse in that 18 months he says surgery will probably be required as she isn’t outgrowing it.
He is also upset our pediatrician scheduled an ultrasound to check her kidneys. He says this is not thorough and the Intravenous Pyelogram (IVP) should have been done not an ultrasound. So sometime in January we are headed back to Buffalo to have this done. She will have iodine injected in her veins to check her kidneys. He also wants Gavyn to have the VCUG procedure done, as there is a 1 in 3 chance a sibling will have reflux as well, even if the other child has no symptoms. So while she is having the IVP he will be in having the VCUG. My poor kids.
While Dr. G was examining Zoe, he says “oh what have they told you about the Sacral Dimple”? I said nothing. When she was born they said to keep it clean, and clean with a Qtip 2x a week. He was shocked that is all they said. Here is a photo of Zoe’s. It goes a little under my pinky as well, but I really didn’t want her butt crack showing.
See the small hole right by my pinky? She has never had any problems, and we keep it really clean. 2% of babies are born with this birth defect, and are usually minor, and cause no problems. But sometimes it is a sign of spinal problems like spinal bifida or other spinal malformation. They can also form cysts, and leak fluid. Ye I was shocked, and we have never been told of this. It really makes me mad. So January 16 we are heading to see the neurosurgeon for an exam to make sure she is ok, and her spine is growing correctly. He doesn’t think hers is anything to be worried about.
Other than this, she is doing good. No fevers, and no other problems. I can’t wait until this is all finished. Buffalo is a 2 hour trip from here. I’m glad we are getting both kids taken care of, to make sure they are healthy. I’ll keep you all updated on future appointments.