Life is pretty crazy around here lately, and it’s been very difficult the last couple of weeks. At times I’ve wanted to blog, just to get out what has been going on, but I’ve decided not to until we know more. But I will let you know what’s going on with my sweet baby girl. If you missed me talking about her recurring fevers, check that out first.
Last Monday we headed up to Children’s Hospital in Buffalo for Zoe to have a renal ultrasound on her kidneys, and to have a voiding cystourethrogram(VCUG) done as the doctors are suspicious of Vesicoureteral Reflux(urinary reflux). I am going to refer to this as UF through the post. During Zoe’s ultrasound we were never really talked to. I know the techs aren’t suppose to say much if anything, so we just watched. At the end of the ultrasound she said her kidneys and bladder looked normal. Here is a photo of a normal kidney, bladder and ureter:
This is good news. There is no damage to her kidneys. We then went into a procedure room and Zoe flipped out. It was difficult because they had to strap her down for the pictures and then we had to leave the room during the procedure. She was catheterized and they filled her bladder with 300mL of a water soluble contrast to see if she had reflux. Chris and I stood outside the door, listening to her scream “I want mommy and daddy”. It’s heartbreaking. We were then allowed back in, and the doctor told us she indeed has urinary reflux. I asked what grade as it’s on a scale of 1-5. He said a 2-3 but we would get a call in about a week. That was it, we went home.
I got the call from our pediatrician yesterday about Zoe’s results. Her kidneys and bladder are normal which is good, but she does have bilateral grade 3 vesicoureteral reflux. (the severe meaning almost a grade 4)What this means in easy terms is when she goes pee, instead of coming all the way out, some travels up her ureter and into her kidneys which is why she keeps getting UTI’s and extreme high fevers. Both sides are doing this. Here is a photo taken from www.pedisurg.com of her grade.
So the blue is what her urine is doing. Luckily her kidneys are still good and haven’t had any damage. We are back to Buffalo to the pediatric urologist on Dec 10 to find out if she is going to need surgery to fix this, or if she will be put on an antibiotic and hopefully grow out of it. Grade 3 is high and she is on the severe side so I have a gut feeling my baby is going to have surgery. She is not strong at all and I already know how this will end up if she has to. She is only 3 and yes still my little baby. I’m never more than a few feet from her and this surgery is 2-3 hours long. I’ve been crying a lot for her:( Even though I don’t know yet. I’ve been through this all before with Gavyn and it will never be easy on a parent to watch your child undergo surgery. Please keep us in your thoughts. I will update you all after her appt on the 10th.
And while I’m here a quick update on my mom. She started her thyroid replacement pills today, and goes back on Thursday for a larger dose and back again Monday for the big dose which leaves her quarantined pretty much. She is doing good though. We are hoping the tiredness will go away finally and we get back the happy mom we are used to. We should have the cancer results back soon from her body scan and hopefully her scan comes back with no cancer anywhere else. Three times is enough! She’s a trooper.
My blog is so behind right now as other things are going on but I’m trying. I’m sorry if I’m doubling up or even tripling up on posts, but I need to get caught up. Sorry for the long post, but I promised all my amazing readers and friends an update. All your comments, prayers and thoughts mean the world to us. Thank you!