Wow, it has been 2 years since I last updated about Zoe’s urinary reflux. If you have not followed our story, you may want to check these resources first
It has been 18 months since Zoe’s last appointment. Children are born with urinary reflux and it has grades from I-V. At her last appointment in July 2012, she was a grade III on her left kidney and a grade II on her right. She had to have another VCUG test to check her kidneys again. The test shows if urine is flowing abnormally. Urinary reflux has urine flowing back up into the kidneys, this is abnormal, as urine should flow from the kidneys, to the bladder through the ureters. The test doesn’t hurt but is very scary for children as they will lie on a large table, get cleaned up with a wash and a catheter is placed. Parents will have to leave the room once they are ready to take X-ray pictures. Children will be asked to release their urine.
We were in high hopes of this appointment as Zoe has had only 3 urinary tract infections since her diagnoses in late 2010. She has been on a daily antibiotic to help prevents UTI’s.
Unfortunately, we didn’t get the results we wanted. The VCUG test results had shown that in 18 months time, she is the same. The same grades on both sides. No change!
Our pediatric urologist gave us 3 options;
- Continue taking the Septra antibiotic and come back in 18 months and perform another VCUG to check her kidneys again
- Surgery to correct the reflux
- Minimally invasive Endourologic surgery named Deflux.
After speaking with Dr. G, we asked what the consequences are of being on an antibiotic for so long. He says the only issues is her body would stop responding to the antibiotic, meaning it would stop working. We are not fond of surgery just yet, so my husband and I decided to continue with the daily antibiotic for another 18 months. When we go back in July 2015 and get her results we will make a choice then if she has not grown out of the reflux.
Zoe’s urologist was pleased that she hasn’t had many UTI’s or high fevers in 3 years and said she still has a lot of growing so she may outgrow it, but he is unsure.
So we wait for another 18 months and pray, pray hard that the antibiotics continue to work. That’s his fear that they will stop working as she has been on them for so long.
Continue to send good thoughts to our little girl that no UTI’s happen!